Ataxia, Did You Know?
Un pódcast de Dana Mauro
55 Episodo
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Alan Thomas is a patient engagement advocate for rare diseases in general and Ataxia
Publicado: 12/4/2018 -
Want to be involved in the Ataxian PROM?
Publicado: 11/4/2018 -
Cindy DeMint support Group leader making a different
Publicado: 9/4/2018 -
Joel Sutherland with DYK
Publicado: 8/4/2018 -
Megan Kaiser discovering latest research.
Publicado: 6/4/2018 -
Harry Orr about discovering the first Ataxia gene and his latest research. Live at #2018AAC
Publicado: 5/4/2018 -
Tips for first time attendees to the Ataxia Conference
Publicado: 23/3/2018 -
Keeping a Medical Binder
Publicado: 11/3/2018 -
Ataxia Suport Groups They get me !
Publicado: 2/3/2018 -
Did You Know Suport Groups are extended family and friends
Publicado: 23/11/2017 -
Did You Know about research
Publicado: 23/11/2017 -
Did You Know ? National Ataxia Foundation believes that this type
Publicado: 16/11/2017 -
Did You Know? invisible aspects of Ataxia
Publicado: 20/9/2017 -
Did You Know ? Annual Ataxia Conference (005)
Publicado: 12/9/2017 -
Did You Know Podcast - Episode One
Publicado: 31/8/2017
Curious, knowledgeable wife of an Ataxian. My mission is to share reputable Ataxia information in short, simple, digestible servings. I want the world to become acquainted with Ataxia and the way it robs someone of their balance, coordination, ability to walk, talk, swallow, and see.